My family is perfectly imperfect and not a day goes by without humour, tears or tantrums. Blogging is the modern version of keeping a diary so feel free to read along while I share the good the bad and the ugly aspects of being me!

Thursday, 1 November 2012

Lets Get Caught Up

After 72 hours of eye drops

Max feeling much better

Wow its been quite a bit since I have blogged. Its not for lack of wanting to, its honestly just been a lack of follow through. The past month has been a busy one but lots of things have been accomplished.
I started the paleo diet that I blogged about previously and have kept up my gym routine three days per week. So far I have lost twelve pounds and now have twenty five to go before getting back to my pre-pregnancy/pre-cancer/pre-craziness weight.
I will be honest and say that dieting makes me mad and moody (just as Dom), I feel deprived and angry at the world. To combat this I have had to figure out ways to allow myself the yummy stuff, on the weekends I eat what I want (which is most often pizza pizza and chicken bites) - they taste like heaven but after a week of eating clean my stomach gets mighty mad.... its all worth it though.
Right now my challenge is Halloween candy, we have it in abundance and the chocolate bars scream at me from their tiny fun sized packages purched atop my fridge. Today for lunch I had scrambled egg whites, grapes/strawberries and two peanut butter cups - it was a yummy combo.
The part of this new lifestyle that surprised me is how much I enjoy going to the gym. The trick that I use for myself is my ibooks app on my ipad. I only allow myself to read while I am on the treadmill and when I am engrossed in a good storyline the time flies by.
Some movement is happening for Maxwell too, for a few weeks he has been complaining about headaches, eye pain and light sensitivity. Like a decent mother I took him to the eye doctor who said that he was mildly far sighted (but not enough yet to require glasses) and that she saw some inflammation which could be the result of some allergy etc.... ok she's the doc and that sounded quite reasonable.
About a week after our appointment I woke to the sound of Maxwell crying about his eyes, his Dad got to him first and was quite disturbed to find Max looking the way that he did. His eyes were purple and almost swollen shut, he'd looked like he's been in a bar fight.
I made an appointment with the family doctor suspecting it to be a possible case of pink eye but that wasn't the case. The doctor suspected it to be something called Uveitis which is common in people who have Crohn's disease. We were given an urgent referral to the eye specialist and were seen within 48 hours, awesome but still problematic. Because Max had been constantly putting his hands to his eyes he had then gotten a bacterial infection which made his eyes (and I quote) "a mess" - the doctor was unable to get a really good look. He gave us strong drops to be used four times a day and instructions to make an appointment when Max starts complaining about the symptoms not when there is a visual indication of a problem.
After hearing about the connection to Crohn's, I emailed Sick Kids GI and told them about what happened and I informed her that I want something done ASAP. This child is dealing with enough without now having his vision effected too.
I was actually surprised when I received an email telling me that they had booked a test called a fluoroscopy (ESSB) which can detect GI diseases and disorders with less risk than a colonoscopy.
The travel to Sick Kids Hospital isn't ideal but I am so pleased with the care that we are getting from them, I am hopeful that we are well on our way to answers.

 To learn about Fluoroscopy (ESSB) click here

1 comment:

  1. Aww...Poor thing... I hope everything gets straightened out soon!!! :)